When I found out about my super uncool gene mutation in July, I needed something to use as an outlet for all of the emotions I was feeling. Well, something other than chocolate peanut butter ice cream and quesadillas. As I began journaling and began processing (not very well at first) this new information about myself, which sucked, I realized a few different things.
- The more I write the better I feel
- This feels really lonely at times
- I have A LOT of support – not everyone has that
- I have a platform and a voice that could reach out and help other people
- I can do hard things
After those realizations, deciding to start this blog that you’re reading currently, was an easy decision. Opening up about one of the more personal parts of my life – not so easy. As it turns out, 90 percent of the people that know me – didn’t even know I had a tumor until weeks after I had the surgery to get it removed, and most still don’t know the type of tumor I had. Even more people are also learning for the first time now about my gene mutation and how rare it is. You see, I have been very private about my medical journey over the past year. Until today.
We all have our “why’s” for why we do the things that we do, whether it’s for the people we love, for recognition, or to help someone in need. Whatever your “why” may be. My “why” for writing my blog is simple. If I can help one person feel less alone in this mess of a process, then my heart is happy. You may never truly know how lonely that one-in-a-million can feel until you find yourself as that very one.
Zebra’s Crossing 